  "Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true." ~ Lyman Frank Baum  |
    Congrats Dagmar & Damian!! |
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Scarlett on the deck off Bowen Island, where we attended a beautiful wedding of friends...  |
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At Jericho Beach...
  Frank & his brother Marc (visiting for the weekend). |
Hunter's Hope Family & Medical Symposium 2008
(where families affected by Krabbe and other Leukodystrophies get together to laugh, learn, love and share)...  Scarlett with her new friend, Hope.   |
Scarlett playing at the
Hunter's Hope DayCare while
Daddy & Mommy went to some of the research/medical workshops. (Yep, nervous-nelly mommy dropped Scarlett off at the Daycare a couple of times!! Can you believe it?? Huge step for mommy! Huge!!)    |
Getting Ready
for the...
Every Step Counts Walk for Krabbe Disease, Newborn Screening, Research, and hopefully one day... a Cure!      Writing our messags to Chloe... a heaven-sent balloon.  Scarlett & Jhyrve (who received a stem-cell transplant for late-onset Krabbe).     Look closely at the red balloons (don't they look just like red hearts? They are regular balloons!)   |
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Playing Bocce Ball with the Big Boys...
      Free as a Bird! |
 Me and My Shadow. |
August Update - Coming Sometime... until then enjoy the photos... thanks for checkin in. |
Click
on the Pretty Pink Peony to Bloom into Scarlett's 3rd year...